Scarlett- I hope you are feeling better. I love the new picture of you with the bow and the "cute" shirt. It sure is fitting because you are cutie. I am so glad you got your new bed and hope you continue to have restful nights. :) xoxoxo
I have been following an EB baby as she goes through a BMT. Her dad has really taught us to open up to them through our comments. Writing to Bella has become a part of my day and I feel a need to continue writing to Scarlett. So I hope you share with her my ramblings.
My daughter has a gtube (she has an interstitial lung disease called NEHI) and we have to tape the feeding tube to the gtube overnight. The thing drives me crazy. This one looks like it locks in place. If it does I wish they made them all the same.
Praying for your sweet girl every night. I dont know if I mentioned it but she is the first one I pray for. She has captured my heart.
1 comment:
Scarlett- I hope you are feeling better. I love the new picture of you with the bow and the "cute" shirt. It sure is fitting because you are cutie. I am so glad you got your new bed and hope you continue to have restful nights. :) xoxoxo
I have been following an EB baby as she goes through a BMT. Her dad has really taught us to open up to them through our comments. Writing to Bella has become a part of my day and I feel a need to continue writing to Scarlett. So I hope you share with her my ramblings.
My daughter has a gtube (she has an interstitial lung disease called NEHI) and we have to tape the feeding tube to the gtube overnight. The thing drives me crazy. This one looks like it locks in place. If it does I wish they made them all the same.
Praying for your sweet girl every night. I dont know if I mentioned it but she is the first one I pray for. She has captured my heart.
Thinking of and praying for all of you.
Denise WI
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