October 28, 2010

Not herself


Scarlett isn't feeling well again. Her temperature has been 102 for the past 48 hours and her heart rate is extremely high. So clearly she isn't happy. :( She got her MMR vaccine a week ago so I'm hoping that she's having a bad reaction to that. I hate seeing her so upset and uncomfortable. It breaks my heart. It makes DEATH so much more real. I hate not knowing what the next minute will hold for her. I hate looking at her knowing that she has a terminal-illness and will not outlive her parents. SMA is just so sad.

I almost forgot to mention that an orthopedist recently diagnosed Scarlett with Scoliosis. Ugh... Will Scarlett ever get a break in life? I feel like everything that could happen, does.

Please say some extra prayers for us! Thank you!

10 comments:

Alerie said...

This breaks my heart!! I'm so sorry!! Your family is in my thoughts and prayers especially little miss Scarlett!!

Anonymous said...

Prayers are being said!!!!

Denise said...

Always praying for Scarlett.

Scarlett- Sending you sweet kisses and bunches of hugs.

kristen kearns said...

Get better soon Baby Scarlett. Thinking of you all. xoxo

tiffany | monuments and melodies said...

Sending MANY, MANY prayers your way!

Amy Beal said...

Scarlett is always in my prayers. I think it's wonderful you share her with all of us on her blog.

Jill said...

Scarlett, you are in our thoughts and prayers! Stay strong little girl! We love you!!!!

HR said...

I hope she is feeling better today! Positive vibes being sent her way.

Anonymous said...

Praying that Scarlett feels better. I love seeing pics of her and her smile.

Anonymous said...

Praying for Scarlett and strength for you and your husband.