The Gwendolyn Strong Foundation made another amazing video on Spinal Muscular Atrophy. Please click on the above link "This Is SMA" to view the video.
This video brings back so many memories. I wish I could go back... Back to when we thought Scarlett was healthy... Back to when we had so many hopes and dreams for her... Back to when things were normal... I hate living every second of the day knowing that it could be the last second that I have with Scarlett. It's heartbreaking to say the least.
1 comment:
I am sorry you have to look at every second like that. I also wish you could go back to those "normal" moments.
I hate living scared. Scared that the antibiotics will stop working. Scared that Clara will get the "wrong" cold (although no cold is a good cold). Scared that I might lose her. Even though our situation is way different than yours....I wish we could be "normal" too.
Scarlett- Sending you kisses and hugs sweet girl. Glad you enjoyed the treasures...there will be more in the near future. :) xoxox
HUGS
Denise WI
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